tag:blogger.com,1999:blog-666711715332777149.comments2020-02-13T05:31:18.857-06:00Autism Co-ParentBeadBrainhttp://www.blogger.com/profile/06624763327099646843noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-666711715332777149.post-37968229179772876982009-07-21T07:43:58.047-05:002009-07-21T07:43:58.047-05:00Thank you for reading and for commenting! I haven&...Thank you for reading and for commenting! I haven't posted for a while. I thought nobody was reading, anyway. My family and friends say I should keep writing it, regardless of whether anyone is paying attention, gather it all together, and publish a book. My friends and family have such confidence in me!<br /><br />I just finished "Autism's False Prophets" by Paul Offit and I highly recommend it. We are being assaulted by false information in the name of "hope," and being left to feel bad that we aren't doing "everything we can" to "cure" or "recover" our children. <br /><br />Thank you again, and I'll look for your blog and future novel! To hell with what a playboy bunny with a need to stay in the spotlight thinks!BeadBrainhttps://www.blogger.com/profile/06624763327099646843noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-37041601938024568252009-07-20T22:35:22.408-05:002009-07-20T22:35:22.408-05:00First I want to say: damn I love your blog.
Next ...First I want to say: damn I love your blog.<br /><br />Next I want to sigh heavily over this. Actually, I feel bad because maybe J. McCarthy herself has been fooled by her own "success" at "curing" her child. I can't imagine the repercussions for her family if this is true.<br /><br />My 3 year old has high functioning ASD and my 6 year old has Down syndrome. I certainly could do so much more, if I did not have to work full time and freelance, like my husband does. The economy slammed us and now we are on our feet, but I'm really hoping I can quit.<br /><br />That being said, I could not give up my own dreams, put my life completely aside, to run ragged on my kids every moment of the day. They are kids, ya know. They should enjoy it too.<br /><br />I did not always think this way. I was a SAHM with a baby with Down syndrome, and I alternated between PPD and everything else: baby yoga, talking, singing, photos over the bed, blah blah blah. <br /><br />Then I had Zoe, who was as demanding a baby as I could imagine. I thought I'd lost my mind, and her SPD diagnosis at 2 was a relief. Her later ASD diagnosis was painful. With 2 children with completely opposite disorders and personalities, my sanity comes from building my own budding career as a blogger, and future novelist.<br /><br />I'm sure Ms. McCarthy would call me a failure, but pursuing my dreams provides an example for my kids too. I dont waste one moment of my time with them, and at the end of the day, that's what matters.<br />ginabad<br /><a href="http://mom-blog.com/" rel="nofollow">mom blog</a>ginabadhttps://www.blogger.com/profile/03088452361963571004noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-18223125328362060692009-04-16T19:26:00.000-05:002009-04-16T19:26:00.000-05:00Hi,
I'm a physician and former faculty member at ...Hi,<br /><br />I'm a physician and former faculty member at Harvard and Stanford Medical Schools. I discovered your blog while looking for the best health writers on the web. I reviewed your posts, and think your writing would be a great addition to the Autism Community on Wellsphere, a top 5 health website that has nearly 5 million visitors monthly. If you would like to learn more about how you can join our Health Blogger Network, republish your blog posts and be featured on the Wellsphere platform, just drop me an email.<br /><br />Cheers,<br />GeoffDr.Rutledgehttps://www.blogger.com/profile/07378666836803624468noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-79108831243176375022009-01-13T11:07:00.000-06:002009-01-13T11:07:00.000-06:00Indeed. But I take my hat off to you doing it on ...Indeed. But I take my hat off to you doing it on your own. I used to be a single divorced parent with one typically developing girl [although I was also a lot younger then, it's no walk in the park] <BR/>Best wishesMaddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-45288801809263596642009-01-02T12:36:00.000-06:002009-01-02T12:36:00.000-06:00Amen!!! Thank you for your wise comments.-MomtoTom...Amen!!! Thank you for your wise comments.<BR/><BR/>-MomtoTomMomtoTomhttps://www.blogger.com/profile/07881155173403922209noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-21961933452496913802008-10-03T10:40:00.000-05:002008-10-03T10:40:00.000-05:00I agree with your point of view and will add your ...I agree with your point of view and will add your blog to my list of faves. Visit me here: <BR/>http://www.autismoptimism.blogspot.com/<BR/>I'm interested to get your opinion on Jenny's use of the word "cure" which I find very misleading!<BR/>Cheers,<BR/>WandaWanda Lynne Younghttps://www.blogger.com/profile/07743462654608113041noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-5112149899230163122008-03-30T12:41:00.000-05:002008-03-30T12:41:00.000-05:00Bravo!Bravo!Betty Johttps://www.blogger.com/profile/06329174952759663094noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-92159396940033791312007-12-17T02:58:00.000-06:002007-12-17T02:58:00.000-06:00Yes it is shocking.Yes it is shocking.Casdokhttps://www.blogger.com/profile/03497897393162856190noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-39151011034286276122007-12-17T02:58:00.000-06:002007-12-17T02:58:00.000-06:00Well said!!Well said!!Casdokhttps://www.blogger.com/profile/03497897393162856190noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-9687494973911451622007-12-15T11:09:00.000-06:002007-12-15T11:09:00.000-06:00Shock value as far as I can see.Best wishesThis is...Shock value as far as I can see.<BR/>Best wishes<BR/><BR/>This is my calling card or link<A HREF="http://whittereronautism.com/" REL="nofollow">"Whittereronautism"</A>until blogger comments get themselves sorted out.Maddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-52330057273867305922007-11-18T12:32:00.000-06:002007-11-18T12:32:00.000-06:00I love your blog!At some point, if you are interes...I love your blog!<BR/><BR/>At some point, if you are interested, i would love to have you as a guest on the LD Podcast, a podcast I produce for parents of kids with LD. I interview a lot of natinal experts, and I have my friend Melody on to talk about how things are with her autistic/asperger's son Alex, now 15, and what they're up to. <BR/>Kids with complex learning and social issues need a special kind of understanding, and not the miracle cures people like Jenny McCarthy are trying to peddle. I just wish more people understood development and got to the root of the problems, rather than searching for the magic beans. If you are interested, please contact me by email at ldpodcast (at) gmail.com.wsh1266https://www.blogger.com/profile/04053273865529791294noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-33090663081006897482007-11-18T00:43:00.000-06:002007-11-18T00:43:00.000-06:00Well I am thoroughly delighted to make your aquain...Well I am thoroughly delighted to make your aquaintance [thanks Liz] Like you, I have no idea where these 'things' come from.<BR/><BR/>Every time I think we might just be getting on an even keel, something blindsides me.<BR/><BR/>Did you ever, in your wildest dreams, think that we could ever become so inventive? I don't know about you [although I have my suspicions] but my children have been the making of me. How bizarre is that?<BR/><BR/>Very, very best wishesMaddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-53584441612913873742007-11-18T00:31:00.000-06:002007-11-18T00:31:00.000-06:00I hear you dearie!I hear you dearie!Maddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-81378975918457224942007-11-18T00:30:00.000-06:002007-11-18T00:30:00.000-06:00Hi I was led here by Liz Ditz.CheersHi I was led here by Liz Ditz.<BR/>CheersMaddyhttps://www.blogger.com/profile/05828186178060722812noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-75761635006410896522007-11-14T23:08:00.000-06:002007-11-14T23:08:00.000-06:00WOW! I totally agree with your comments. I will ...WOW! I totally agree with your comments. I will add you to my blog roll and be back.MiSScNeLLYhttps://www.blogger.com/profile/12586391492078199137noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-69629498786613391752007-11-14T18:59:00.000-06:002007-11-14T18:59:00.000-06:00Julie - I'm thrilled that so many people are findi...Julie - I'm thrilled that so many people are finding you through About.com. A voice of reason is rare indeed.<BR/><BR/>Best,<BR/><BR/>Lisa RudyLisa Jo Rudyhttps://www.blogger.com/profile/07517170138121456391noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-77083344124365097992007-11-14T16:35:00.000-06:002007-11-14T16:35:00.000-06:00Hi, found your blog from a local board here in Mas...Hi, found your blog from a local board here in Massachusetts, and I think they found it from About.com posting part of your letter to Jenny. Anyway, I think this is contract is a great idea!roxxyhttps://www.blogger.com/profile/02695406197300179424noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-47899674938845559472007-11-14T12:50:00.000-06:002007-11-14T12:50:00.000-06:00I am a mother of a 7 y/o with autism, who gets ann...I am a mother of a 7 y/o with autism, who gets annoyed by JM, too. How ANY other parent of a child with autism can get on a high horse, point their finger and say "you're not doing your best" is beyond me. What we cope with day to day would make most parents crumble.<BR/><BR/>Anyway, I just wanted to say "thank you" for your blog, and for putting into words what I have failed to do. I've had many discussions recently about the word "cure" and what that means in relation to autism. IMO, my son will never be "cured" but will continue to improve day by day.<BR/><BR/>thanks again!!Anghttps://www.blogger.com/profile/04480948310754570922noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-83381931164586481752007-11-13T20:12:00.000-06:002007-11-13T20:12:00.000-06:00Thank you for putting this so well!!!I hope you do...Thank you for putting this so well!!!<BR/>I hope you don't mind if I link to your post (and to your blog)!<BR/><BR/>I must add that just because a kid gets embarrassed when Mom hugs him doesn't mean he's cured, either. BTDT! Oh, and puberty for our kids comes early a lot of the time. Can we be at her house to film? ;)Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-88315386838193279792007-11-13T18:00:00.000-06:002007-11-13T18:00:00.000-06:00We found your blog from the About.com story, too. ...We found your blog from the About.com story, too. Jenny McCarthy's book has been driving me wild since she did the talk show circuit. I'm glad autism is getting the press, but I don't need people calling me to say if I change my daughter's diet, she'll be 'cured'. That undoes all the work we've done trying to get people to understand how she thinks, and why she behaves as she does. Our daughter just turned 13, so I guess there's no hope for her anyway?! HA! I think my biggest failing as a parent would be to believe that.<BR/><BR/>I think your blog is so well written! You inspired me to post about it as well - I hope you'll visit. I did link back to you, too. We are in WI, as well.Michellehttps://www.blogger.com/profile/04082807589185886275noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-78949272174436252692007-11-13T17:57:00.000-06:002007-11-13T17:57:00.000-06:00Thank you!!A friend sent this to me after I had an...Thank you!!<BR/><BR/>A friend sent this to me after I had an article published on Associated Press about the cause & cure debates that seem to be dividing the autism community.<BR/><BR/>Jenny McCarthy has done nothing to help that. Because people seem to listen to celebs who decide to become a mouth piece for whatever cause, they think that they know everything there is to know about that cause. I am not sure if that helps or harms the causes.jorghahaqhttps://www.blogger.com/profile/08121983156576734515noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-74951010524967546662007-11-13T09:53:00.000-06:002007-11-13T09:53:00.000-06:00Just found your blog (linked from About.com). Read...Just found your blog (linked from About.com). Read just this one entry and plan to go back and read the others and bookmark you too. I am constantly being told that Jenny McCarthy cured her kid so why haven't I done the same - he is almost 10 you know and time is running out. Grrr! Every time I see her on that weight loss commercial I want to pitch the remote at the stupid tv. Gee, it must be nice to have all that time on your hands that you can cure a little boy and still have time to write books and do commercials and talk shows and date odd comedians and whatever else she does.<BR/><BR/>I fight for my son every day but I have never had the illusion that I could cure his autism - not once. I like him the way he is and have never had the idea to try to mold him or my daughter into something that society wants. <BR/><BR/>My favourite quote in the world right now is "Children are not things to be molded, but are people to be unfolded." - Jesse Lair<BR/><BR/>Thanks for making me feel better!<BR/>Lizlizziehoophttps://www.blogger.com/profile/17549192854811356907noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-31795192258963050182007-11-12T19:05:00.000-06:002007-11-12T19:05:00.000-06:00Thank you! You said what I couldn't find the word...Thank you! You said what I couldn't find the words to say. There was just something about seeing and hearing Jenny McCarthy that frustrated me, and that was it.<BR/><BR/>I felt as if anyone who knew me and saw her thought that I must not be doing everything because my 12 year old is "still autistic". Hello..is is and always will be.<BR/><BR/>As if I don't think EVERY DAY what am I not doing...what I should be doing...what do I need to stop doing...<BR/><BR/>That's all...thxBetty Johttps://www.blogger.com/profile/06329174952759663094noreply@blogger.comtag:blogger.com,1999:blog-666711715332777149.post-27946047905636597612007-11-12T11:21:00.000-06:002007-11-12T11:21:00.000-06:00Many of Kanner's "success stories" were obviously ...Many of Kanner's "success stories" were obviously autistic at age 11. In fact, it was in their mid to late teens when they spent effort to try to fit themselves, and this was one of the things Kanner found was significant for a good outcome.<BR/><BR/>This was way before kids were diagnosed at 2 and turned out not to be autistic some years later. Kanner's kids came to him when they were considerably older than 2, and were obviously autistic.<BR/><BR/>I do take issue with your characterization of autism as some sort of emergency. I not only don't see the evidence to warrant this, but I've demonstrated this is not the case.Anonymousnoreply@blogger.com